The Doctor Must Have Been Sleeping On The Study
(My son stops breathing when he’s asleep, and has been seeing doctors regularly his whole life for it. They have no idea why it happens, but it definitely does, so we monitor it closely. The following happens with a doctor he’s seen at least every six months for years, when we go in to ask if there are more tests we could run.)
Doctor: “Why are you guys here today? It’s a little early for his next check-up.”
Me: “We want to know if there are more tests we can run. I know we talked about genetic testing last year, and we’re interested in going that route.”
Doctor: “Genetic testing? Who did you talk to about that? Why would you want to do it?”
Me: “Erm… You’re the one who suggested it last year. We got it all approved with insurance and had the paperwork ready to go, when you decided it wasn’t going to be worth it to do it, and to try something else.”
Doctor: “I don’t remember talking to you about genetic testing, and I don’t know why I’d suggest it. His last sleep study looked really good.”
Me & Husband: “WHAT?!”
Doctor: “I mean, there are still instances of the breathing issue happening, but they’re well within normal range.”
Husband: “Five months ago, you told us he wasn’t getting better, and that we couldn’t stop any treatment. You even sent us to another specialist then, too.”
Doctor: “Well, you can’t expect me to remember what I told you that long ago. Genetic testing is expensive, and a lot to do on someone so young, so let’s just run another sleep study and keep doing what we’ve been doing.”
(We left that appointment furious, and immediately called his pediatrician for a referral so we could get a second opinion. We still have no answers, but we like his new doctor a lot!)